Imagine beginning your morning up in agonising pain, before spending the day vomiting, fatigued, and suffering from head-splitting migraines every waking hour.
This is the horrific reality for Emily Rosner, who has late stage Lyme disease.
She is bedridden most days, incredibly sensitive to light or sound, and is unable to work, let alone feed or dress herself.
The 26-year-old from Sydney has spent the last three years seeing hundreds of doctors who were baffled with her symptoms and failed to diagnose her illness.
As Lyme disease is not officially recognised in Australia, Ms Rosner has struggled to get adequate treatment and has been unable to work, study, or even leave her bedroom.
Now she and her mother Leanne White are travelling to Switzerland to undergo revolutionary treatment which could change her life.
‘From when she was quite small Emily had health problems’, Ms White told Daily Mail Australia.
‘There has sort of been periods in her life where she had suddenly got a bit worse, such as during puberty, and then again in her early twenties.
‘This last three years she’s really been extremely unwell’, Ms Rosner’s mother added.
A single mum, Ms White is her daughter’s sole carer and supports her financially while taking her to appointments – all while working full time as a teacher.
The struggle to work out Ms Rosner’s diagnosis placed a huge financial strain on the family, who have spent tens of thousands of dollars on hundreds of appointments in the past three years.
‘Because it’s not recognised in Australia there is no cover for it, it’s purely out of pocket,’ Ms White said.
On top of that there has been the mental toll of misdiagnosis, and Ms Rosner being told it’s simply ‘all in your head’.
‘A lot of doctors as well because it’s not recognised in Australia, they don’t think it’s real,’ her mother said.
‘It’s very frustrating and it’s crushing.’
In recent months Ms Rosner’s condition has deteriorated significantly, with her cognitive function the most noticeably impaired.
Her mother said the 26-year-old’s short-term memory is failing, and her ability to cope with hurdles is decreasing.
Next week Ms Rosner and her mother will head overseas so she can undergo revolutionary treatment at a Switzerland clinic.
‘We heard about this one in Switzerland, someone in one of our forums had been there and was really sick and she came home much improved,’ Ms White revealed.
‘It really suited us because it’s a really holistic approach.’
However the treatment will cost over $100,000 for three months, and while Ms White is using the equity on her home to pay for it, it’s not enough.
‘It is expensive, but in the end you think what’s the use of having anything if you don’t have your health,’ Ms White said.